So much has gone on this last week or so….it is like a disaster film really. Everywhere I turn I seem to get told bad news but perhaps that’s just life as you get older. So, I’m going to try to stay positive with it all!!! Hurrah! So today’s post is an update…not to be negative but just to give some facts.
This cycle has seen mixed side effects. Up till Saturday, I’d been doing really really well which is good news. Even the peripheral neuropathy seemed to have calmed down and all was looking great. Me being me though had wondered if that meant the drugs weren’t doing their job. Well, that will teach me to worry about everything, as Saturday afternoon brought the start of the exhaustion again (probably partly to do with all the bad news I’d been hearing) and then by Monday, I had started getting quite bad PN in my feet and hands. Which has now nicely spread into my calves. It is a really weird sensation….the soles of my feet feel like they’re on fire and my calves feel like I have shin splints in them. Peculiar! It’s been pretty frustrating as it hurts a bit to walk downstairs and to crouch etc…..I know, I should just stop crouching and walking downstairs….lol!
Anyway, I’ve spoken to the hospital and it sounds like there may be some medication they can give me to help with the burning sensation but unless I travel down there I can’t get it so I’m hoping it calms down over the next day and I don’t need to do that….as much as anything I’m not sure how safe I am to be driving long distances