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Hi there, gang.We had quite the morning. We saw Dr. Mannina the Radiology Oncologist at 8:30.He informed us that Dom had broken ribs on the right, new lesions on the left, and a large lesion on his right hip.A year or so ago was when Dom had a Pl…
Many do not know, but for several years, my child has been struggling with depression aggravated by an all-consuming-Eating Disorder. I carry around a backpack that doubles as a family records filing cabinet. Most days you can find me in a lobby waiting at any point in time most days of the week. I… Continue reading Take a Ride with me… to Towson
… Sorry for the length of this entry, I am writing a book, this is just a chapter… Like every 44 year old woman… I secretly love Eminem and NF music (haha)… Welcome to my mind. When ADHD shows up and the thoughts and questions come about life, I start listening to hip hop music… Continue reading I’ve been thinking lately…
First, my big news: I began physiotherapy yesterday, and, drum roll!!!, I won’t have to wear my shoulder brace anymore, or rather, “you don’t have to wear it unless you feel as though you need it,” my physiotherapist told me. She reassured me that there’s no way I could make my shoulder worse unless she…
6.19.19
Hello to no new dramatic news, although everything is dramatic around here. Sad, tragic, heartbreaking, unbelievable, yet sweet moments of ok…
So much going on psychologically, so much to process, so much to compartmentalize… I just wan…
In this round of #AmyloidosisJC, we will be discussing a basic science paper that describes small molecules that stabilize light chain proteins in vitro. The following summary was written by Gareth Morgan (@wittyremarkhere), the first author. He will l…
Ok so after my last post, I have had my results back and my paraprotein has gone up again. Not fast enough to worry massively but enough that my consultant wants me to start treatment in July. So we’re back … Continue reading →
Do it, do it now! Write down the things you’re loved ones say to you. Get them to write things down, not an impersonal email, but a proper handwritten letter. Capture their image, their voice, their essence on whatever means you can. Keep it safe for t…
First things first, TODAY is my 14th year since diagnosis. I was standing in our driveway and Barclay took the phone call from the awful doctor. Doesn’t matter, here I am!!!! So onward. Next week I get my labs in the middle of all this and we’ll see what my numbers do. Up or down??? […]
*My 3 day roadtrip to Mississippi was an emotional energy rollercoaster that stayed inside my body 3 days prior, until maybe 3 days after. *now compute that. – My best friend rode along to make sure I did not snooze at the wheel, and… did not over-react like a crazy mom (externally). I neglected to factor… Continue reading Motherhood