Hello July 2016
Can it really be?
In just a few days, it will be 6 years since my July 5, 2010 Stem Cell Transplant to save my life from Myeloma. Wow 6 years ago!
I was in such a naive, denial fog back then. Truly I really had no clue what my diagnosis really entailed, what I was in for regarding treatments, and how long this journey was going to last. I seriously thought I’d just get some chemo, loose some hair, suffer a bit, eventually be ok, and that would be that. Well that did happen… and life moved forward… but I really thought that would be it. I just didn’t connect with my incurable diagnosis, and long term treatment life sentence.
Well here I am 6+ years later, still in this battle, still doing chemo, still losing my hair, and even more exhausted than ever, but more in touch than ever with what this cancer journey really is. It is forever. Myeloma is forever. Chemo is forever. Being in treatment is forever. A crazy lifestyle that I will never get used to. But so thankful I am here for my 6th Stem Cell Transplant Anniversary!
Reflecting on anniversary #6 sure makes me grateful and thankful to still be alive. Back in 2010, I think my statistics were quite grim. My doctors really didn’t want to say what my timeline might be, but they did always refer to my case as “high risk”. I’m pretty proud to be here 6.5 years later after diagnosis. So many I know through blogs, myeloma sites, support groups, the chemo lab etc, sadly are not. Some go faster than others, and some have longevity that blows my mind. I battle forward daily, accept my reality better each day, each treatment, and each time I receive my blood test results.
July 5, 2016. My 6 year Stem Cell Transplant anniversary. I think that’s pretty remarkable to have survived this deadly cancer 6.5 years!
and helping build my stemmies up for collection
my very abundant stemmies were ready for harvesting
in just 2 days, June 2010
and in prep for Melphalan, bye bye blonde pony tail
Thank you Christine
on the 4th of July
There’s my sanitized life saving stemmies, special delivery!
(Normal IgA = 70 – 400, Normal IgG = 700 – 1600, Normal IgM = 40 – 230)
Date IgA IgG IgM
240 < 18
BEGIN NEW KYPROLIS + DEX TREATMENT:
233 < 18
230 < 18
262 < 18
228 < 18
221 < 18
227 < 18
226 < 18
4/17/16 717 251 < 17
5/15/16 808 232 < 17
6/23/16 1140!! 267 < 17
M Protein: PROTEIN ELECTROPHORESIS RESULT, SERUM
Normal = 0 … Zero
July = 1.26
Aug = 1.01
Oct = 1.58
BEGIN NEW KYPROLIS + DEX TREATMENT:
Nov = 1.12
Dec and Jan = Not Detectable! thank you Kyprolis + Dex
Feb = 0.62 Ugh! Quite a jump in a short period of time (Off Dex)
March = Abnormal, but no M-Protein number mentioned (On Dex)
April = Abnormal, but M Protein value not detectable (On Dex)
May = .75 That’s a BIG upward Trend in just one month!
June = 1.06
uh oh… :(((
Ok, don’t yell at me too much… I have enough grief from my family, medical staff and friends. Yes, I’m super stubborn about treatment, scared to increase my doses because of fear of organ failure, and I’m scared of worse side effects than I already experience, etc. (Barely made it to and from the June weddings due to GI catastrophes!)
But I got the message loud and clear yesterday at my monthly oncology meeting, that I really do need to up my Kyrprolis dose. So yes I will. I will start the higher dose this coming week, ironically on July 5, my 6 year SCT anniversary day! How appropriate and ironic is that! Additionally, I confessed that I had been taking a full break of everything on my Kyprolis off week, and I wasn’t taking my weekly Dex steroids on my break week. Ugh, I just wanted a few days to feel a bit “normal”. Ok, Ok, I learned my lesson. Myeloma is stronger than me, and I have to behave. So no more medication breaks for me. Here goes more intense Kyprolis beginning next week, and dang you Dex, every darn week. I get the message myeloma. I can’t slack off, let you become more powerful and win. Not a happy camper here, but my blood work is my reality check. I will behave this month and see what happens. Promise.
Today being chemo crash day, I’m draggy, groggy, dizzy and just not feeling great, but had a lot happening outside, so I didn’t have the choice to just park myself inside, as I should have. Yep, I really should have just stayed inside, because this craziness just happened to me… omg!! so ridiculous, so dangerous, but so incredibly hilarious!
Here’s the story:
I went to move the horse poop container, stupidly, with the lid open, hanging down, when suddenly I tripped on it, or it caught on a rock, or my foot got caught.. and boom, over the can went, catching me, tripping me, throwing me half on top, and half in the can, FULL ON FACE PLANT INTO THE HORSE POOP, into the trash can face first! My face got caught on the edge of the can, pushing my neck backwards, as my body splayed across the can.. then I fully slipped into the manure, head first!
I couldn’t believe what was happening, and I truly thought I had broken my neck, as I couldn’t move for half a second. How I got myself out, I don’t know. But I do know this was the stupidest, yet most hilarious thing I have ever had happen to me. Immune compromised chemo cancer patient falls head first into a trash bin full of horse poop! Yep, that’s my life! I am so bruised, so sore, so achy. The left side of my face is scratched, bruised, bleeding and swollen. Probably have bacteria growing in it now… my legs and arms are bruised and cut and I have a killer headache. But, no time to clean up and whine… the dump truck delivery guy pulls up, as I’m wiping off green poop and red blood.
Want to see a picture?… I think I should go shower first…
My life… it just gets more hilarious each day!
Ok, here I am with my lovely facial injuries. I normally wouldn’t post a pic of me looking like this, as I am a bit vain, but it’s too ridiculous and funny to not post. I also have bruises on my left arm and leg and my back and neck are killing me :(( Sooooooo stupid of me! I’m not very good at selfies either! Note how thin my hair is too..
And for your final laugh, just picture a trash can like this, filled with horse manure, tipped over, with me head first into it! Seriously ridiculous! An immune compromised cancer patient on chemo, head first into horse poop! I hurt so much where I hit, but my gut hurts more from laughing at what I did to myself!!!
live well, and make a difference somewhere, somehow, with someone or something
as often as you can!