4 Years Ago… – MyelomaBlogs.org

So four years ago, July 2009, my m-spike was found by a rheumatologist who I had been referred to via my primary care doctor. This rheumatologist told me this monoclonal protein was not really a rheumatological finding, but a hematological issue. He then sent me to a hematologist/oncologist to have the monoclonal protein evaluated further. I actually was organizing my bags of medical records and found what I wrote down during this phone call …

My note taking skills have not improved since then! I hope my spelling has? ;)

In August 2009 I met with this general hematologist/oncologist who told me I either had multiple myeloma or monoclonal gammopathy of uncertain significance. I had to have more blood work, 24 hour urine collection, and a skeletal survey. I met with the hem/onc at the beginning of September and was told it was in fact MGUS, and not full blown multiple myeloma. A definite sigh of relief! He told me I needed to follow up with him in 6 months to repeat the 24 hour urine and blood work. This doctor was very nice, but not a myeloma specialist… plus he reminded us a bit of Rain Man. ;)

So my family members thought that it might be a good idea to see a specialist right downtown. My sister was able to get recommendations from doctors she works with…and Dr. R got the most votes! November 2009 was my first appointment at DFCI…at the old building which is so strange to think about – how different that building was from the gorgeous new building that opened a few years ago. And well, the rest is history.

A little update of what’s happening currently: Last week I had my 3 month blood draw and 24 hour urine collection drop off. I meet with Dr. R this week to discuss the results. Most are finalized already and are looking fairly status quo. Hoping for no surprises! Que sera sera.