It’s crazy Treatment Day, with a side of Roids!
Yes, it’s Monday Medical Madness Day with 40mg Dexamethasone Steroids, so I’m flying high and wanting to have fun, in all this crazy illness insanity between me and my hubby!
I ‘ll detail my current Myeloma status labs below, after my Velcade appointment. I do screenshots from the Kaiser website, then download, then upload, and hope to find time with all my hubby’s “demands” LOL!!! It’s like I have a 180 pound Toddler, who wants to follow me everywhere and try to talk about things, but it’s mostly “nonsense” coming out of his mouth :(( But I can read his mind after 39 years, so I figure out what he’s trying to convey. So so tragic. Losing mental functionality is so awful… but all this stupid cancer stuff is too. I just can’t wrap my head around both our terminal, incurable illnesses. But I’m doing better now, not having the intense meltdowns I did a few months ago. Acceptance and moving forward daily, is key to survival…
I used to love to write my blogs late a night, when the house was quiet, and he was asleep in his chair, or in bed, the doggies and all the critters sleeping, while I had the windows open, listening to the summer breeze, crickets and the hoot owls hooting… so peaceful, so serene…
NOW… omg, I NEVER get any time to myself… but that’s another story perhaps for a different post.
So coming later later later....
Screenshots below :))
Organ function stats
And you know what… the results are “shockingly” ok considering all the STRESSSSSSS, super random eating I do, and all the non stop, I never get to rest, never have time to be a “cancer patient” lifestyle I have here. Except on days 2, 3, 4 after Velcade, Dex, Cytoxan, I do feel kinda “gross”, so I do sometimes, just have to sit and feel awful…. BUT NOT TODAY, THANK YOU 40mg DexaMETHasone :))
HERE THEY ARE!!!
Hoping you are doing well if you are a myeloma buddy, and your treatments are effective, healing, and manageable.
If you’re friends, family or happily not touched by all this medical insanity, I hope you are having a wonderful end of your summer, and all is good with you and yours!
There currently are more than 300 clinical trials ongoing around the world that are investigating treatments for multiple myeloma and looking for patient participants. Most of these trials are exploring new myeloma therapies that have not yet been approved for use outside of clinical trials, and many of these “investigational” therapies, as they often are called, have the potential to be extremely effective.