Friday – Day One

It all started off pretty promising, but I have learnt not to plan or get my hopes up about much. After hanging around in Ambulatory Care we managed to make it downstairs in time for a successful session with a counsellor. Then it was back up to Ambulatory Care to see the doctor before being allowed back to the Cotton Rooms for some much needed rest. Unfortunately just as we got settled back down, there was a call to return to Ambi Care as my potassium levels were pretty low, so I had to hang around there for another three hours or so. Finally we go back to the Cotton rooms and I settled down in my PJ’s. I took my temperature about 5.30 and oh dear it was 38.2 not a good sign. I thought I would just leave it half hour before taking again but unfortunately it was the same. This meant contacting Ambi Care who instructed us to get down to A&E. Another 3 hours later I was finally sent up to the ward where I hung around for another 45 mins or so before a nurse finally came to see me and relieve me of the drug I was holding up, that was supposedly going into my pick line.

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Oh dear, I do look glum!

So here I am on T16 room 20. It’s not the best of rooms as I think it smells of piss. (Sorry) I do however have a good view over London and an en suite shower room.

Last night I slept on and off, in between the various visits from the nurses for obs etc.

Who knows what today will bring. My temperature seems to have gone back down. I suppose it would be too much to hope to be sent back to the Cotton Rooms?

Deborah x

Filed under: Myeloma, NHS