The data is in, 25% of patients are diagnosed 306 days after first symptoms, and the average life expectancy of an untreated myeloma patient is 9 months or 279 days. This results in the experience the UK’s National Institute of Health reported that 20% of newly diagnosed patients die in the first 2 months. This sounds grim, however there is hope, if you RUN, DO NOT WALK and get IMMEDIATE treatment from a multiple myeloma specialist. The USA SEER statistics show a 25% average first year death rate, whereas the listed myeloma specialists have a I and 2 year death rates of between 0% and 12%. So you are at least 2 times more likely to die if not treated by a myeloma specialist. You can find a listing of myeloma specialists if you CLICK HERE.
I would like to think that no one would be put into this situation, and we all would receive a timely diagnosis and have adequate time to evaluate our situation. But If you are diagnosed with stage 3 myeloma, I would say this is your one best chance of survival. One day, but not anytime soon, the general practitioners of the world will become more skilled at multiple myeloma diagnosis, and the older population(60+) will get yearly blood tests that help to find anemia, high calcium, and elevated proteins in the blood. But now with just 3% of the population with any knowledge of mulitple myeloma, I think this will not happen for a long long time.