It has been such a long time since I wrote my last post, “The Philosophy of Piglet and Pooh.” In that post, Pooh exclaimed the sentiment that “today” is his favorite day. I have given a lot of thought about what to write in a new post since there haven’t been many of my todays that I can call my favorite lately. However, there were a few days that were my favorites and I will call those days the best of times.
The Best of Times
During December I got great pleasure from preparing for Christmas. Decorating is something that I have always loved to do but since my diagnosis of multiple myeloma I haven’t been able to do as much. This year was different. Even though I was often tired and not feeling great, I felt compelled to decorate. I even created a new vignette, “Bonfire” that inspired me and put me in the Christmas spirit. Now, my house was not decorated in the full regalia that I used to do, but it was much more than I have done since 2009.
My most recent appointment was on January 28. I had the usual blood tests and the CBC numbers were pretty typical for me. I won’t see the light chain results until early next week. While I would be relieved to see the number go down, I have told myself I will be quite thrilled if it doesn’t go up as much as it did last time. At this point, any positive change is a good thing. The last two months have revolved around not feeling well most of the time and light chain numbers going up, so even the slightest improvement will make me happy.
The very worst of times was on January 7 when we had to say goodbye to our beautiful 18 year old tabby cat, Aislinn. She was an extraordinary cat who was tiny in stature but huge in personality. She was in charge at our house and everyone knew it. When people came to visit, they would often ask, “Where is Aislinn?” We always liked to say she had “star” quality. She was a star in our lives and we will love her forever.
I am hopeful that I will soon begin to enjoy more “favorite” days. As my body gets more accustomed to the thalidomide, there should be more days of feeling better than just all right. If the maximum dosage I am receiving starts beating the light chain numbers back towards the normal range, it will change my outlook completely. I have been discouraged in the last two months, but I am beginning to emerge from that feeling and looking toward brighter days. Just as the days are getting longer, my hopes are growing for the ultimate goal of achieving remission again.