Watch, wait and wonder ….

…again! The consultant yesterday was reluctant to do much more. So I must hang on for another week and see him again next Tuesday. I must admit I do agree with him, although I quickly want to get to my next round of chemo so I can get it all over and done with, but unfortunately my side effects if anything have got worse. Last night was rough, even with the highest dose of pain killers I can take and an extra sleeping tablet I was woken several times either by hot flushes or the severe pain.

The neuropathic pain appears to have got worse, according to the doctor yesterday it is a good sign and demonstrates how well the Velcade has worked but he is reluctant to give me any more at the risk of permanent damage. I must admit I couldn’t put up with this amount of pain for the rest of my life.

The good news is my head is in a better space and I even managed to put on a spot of make up yesterday. I must admit I was quite happy with the results even with my bald head.

Today I think I will try to contact my local Macmillan or Palliative care service to see of they can advice me on pain management other than that I will rest as I want to preserve all my energy for Friday.

Scores on the board today are; Physical Health = 8 Mental Health = 5

I see a bit of blue sky peeping out between the clouds from my position lying here in bed.

If any one is passing feel free to pop in, I shall probably set myself up in the conservatory today.

Have a good day yourselves and don’t work too hard.

Love from Deborah x