The next time I see that Easter Bunny……………

I’m gonna get him in my cross-hares and shoot the sumbitch. Well, again, Easter bad luck rears its ugly head. As a kid, I hated this holiday because we always got the stomach flu around that time.
In 2008, Tim got a horrible stomach bug for Easter. This year, he went to the hospital Easter Sunday with a bad case of disseminated shingles, which is fancy talk for shingles that went systemic, so it’s like having the shingles and the chicken pox version of the virus at the same time. As Tim would say, “go big or go home.”  I saw
a bright red patch on the back of his leg Sat. We had our niece’s(and Goddaughter’s) communion service that night. When Tim got dressed for bed, he had blemishes on his body and I gave him an acyclovir pill from the old stash just in case. By morning, I knew. Off to the ER cause doc’s aren’t open on Easter Sunday. They transferred him via ambulance to the main campus where his onc’s are
and he was put on an acyclovir drip. They had no private rooms open in the entire hospital(he was in an isolation room of the ER ’cause it’s contagious) and he was stuck in an expanded area of the ER since 3:30 Monday morning. NO private bathroom. He’s sick and immunocompromised and he’s using the same bathroom everyone in the ER is using. Walked thru a puddle of urine in his socks  Monday night.
There is no cell phone service in this ER. Half underground and they have one phone they let patients use for a short time. He got really sick Monday night. Bad headache and nausea. Tried to get them to let him use the phone for 3 hours to get me. They were not bringing him meds, delivered a cream that was ordered for him at noon at MIDNIGHT. Waiting hours for tylenol. I had only 4 hours sleep the night before and he called me at 12:15 Monday night ready to get up and walk out of the hospital. I jumped in the car and raced down there. Banged some heads, as diplomatically as possible. Called the on-call doc at the cancer center and said, “I want him in the ICU or something. He’s at risk for encephelitis, has a headache and nausea, and they’re not taking care of him in the ER and he’s walking thru other people’s urine to use a dirty, germ-filled bathroom. NOT ACCEPTABLE.
The doc tried but there was just no rooms in that hospital to be had. They are expanding, but not fast enough. I got him in an isolation room in the ER before I went back home at 3 am so he at least had his own bathroom. I think that was only because a patient died. UGH. They cleaned the room and then I went in there afterward with my antibacterial wipes and did it again. On Tuesday evening, they finally got him a room. It was the top floor, corner suite overlooking the NYC skyline and the runway for a small, local airport. It was a great room, best in the hospital, no doubt, crazy view, and the nurses were falling all over themselves to be nice to him. Monday night, he’s ready to walk outta there, now, he didn’t want to come home. Full menu to order whatever he wanted to eat. I mean, Jeez, he doesn’t get this at home! On Wed. I went there to get him showered up. I thought, make him look good for when the infectious disease doc gets here and maybe he’ll get sprung. Well, it worked, though I’m sure it was just that his lesions had all scabbed up. They released him and we had our daughter’s first JV softball game to get to so they did the fastest discharge job ever. He spent 4 more days on high dose Valtrex and will now take 1-400mg. acyclovir pill for a very long time. It was a scary thing. I did a search on disseminated shingles and it can attack your organs, liver, lungs, brain. GREAT. It was an exhausting week, running back and forth to the hospital, getting Liv where she needed to be with school and softball, keeping the home fires burning and fielding business calls, etc.
Glad it’s over. Tim feels OK but is very tired. He is VERY busy at work and this just jammed him up even more. He went to work on Friday, after resting up on Thurs. and doing phone calls, but it’s exhausting for him. Like Lorna says, why can’t we hit the lottery, so that we at least don’t have to worry about money on top of worrying about MM. It’s only fair, doncha think? So, that’s the latest chapter in our MM journey. Not a pleasant one, but, I’m always saying, “it could be worse.” I try to be grateful for the things that do go right. The medication worked, he recovered quickly, he seems to have no sign of post-herpatic neuralgia. Now, if our daughter doesn’t come down with chicken pox in these next 3 weeks, I will be very grateful! And, if spring would just get here, maybe my mood will be better, cause us Jersey folk REALLY need to feel some sunshine and warmth around here.