The last few weeks have involved waiting for results. As I noted in my last post, my lambda light chain has trended up out of the normal range of 5.7 – 26.3:
9/24/12 – 20.61
10/26/12 – 27.57 (H)
11/05/12 – 33.62 (H)
11/29/12 – 42.64 (H)
On November 19, I had a bone marrow biopsy and then had a long wait until November 29 to get the results. For most of the wait I was fine. But as the 29th drew near, my stress level went up and I was ready for the waiting to be over. What a relief it was when my oncologist reported the results. My bone marrow was fine with less than 1% plasma cells. In fact, it was almost the same as it was a year and a half ago three months after transplant.
Next, my oncologist ordered another blood test and a complete CT scan to rule out the possibility of another plasmacytoma forming. I was able to have the scan the next day and then the “waiting for results” limbo began again. I don’t know why I was even more stressed about the CT scan but I was. On December 6, I had another appointment with my oncologist to get the CT results. It is a good thing I love my doctor since I see him so often! Sometimes, he gets behind on the schedule because he never hurries his patients and takes so much time with each one so the wait can be long. Since my appointment was late in the day, I was expecting a long and stressful wait, but he was on time. My CT scan was clear and I was two for two on my tests!
However, my lambda light chain had gone up again and was at 42.64. My doctor had consulted with his colleague and they both advised that we just sit tight at this point. The small number of myeloma cells are not hurting me or making me ill, so we will wait until January to make any decisions on how to proceed. My oncologist will consult with the myeloma experts at Fred Hutchinson Cancer Research Center in Seattle to get their opinion.
Realistically, I know that the time will come when the myeloma cells will need a “slap down” but the time is not right now and I am not going to worry about it (much) until my next appointment in January. In the meantime, I am going to start getting excited about Christmas and enjoying the season.