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#amyloidosisJC resumes this week on a new night: Wednesday night (Jan 23, 2019 at 8 pm EST). Short notice and a short but important article describing a series of patients with a relatively recently recognized subtype of amyloidosis: ALe…
I walked this morning and B actually felt like walking too!!! Hurray!!! As soon as we were done though it started pouring rain. It was funny. Today is supposed to be rainy but then the rest of the week looks lovely and in the mid-’60s. Yes, I can get outside. I am wanting to get […]
1.19.19
Hello 1.19.19.
So fun to type out 9’s! Yes, 9’s. 9’s representing 9 years of battling and living with Myeloma.
My topic of this post was going to be philosophizing about Happiness. Being Happy. Remaining Happy. Finding Happiness. Maintaining …
We made it through the storm but boy did the Sierra get a boatload of snow. I think it was over 2 feet and that’s a lot. There was wind from around 8 pm to midnight and then just like that it turned off. Kinda weird. NO trees down but some branches and I don’t […]
Hi, gang- I was delighted to get a package full of products from TUSCANINI! As you can imagine, being married to an Italian, this stuff is right up my alley. And it’s GREAT! These will be staples in my kitchen. My Dominic loved …
This is a rare weather prediction for the Sierras. Where we are in the foothills there is lots of rain BUT THERE WILL BE WINDS. High winds. Since we’re on the eastern side of the Sacramento Valley that is where the high wind warning is. I’m not sure how I feel about this. In the […]
It’s been so long since I last blogged. Nearly every week at least one acquaintance asks me when I will post an update. It’s not at all that I don’t want to, it’s much more complicated. I had an opportunity nearly two years ago to be a patient expert on a mixed panel for PatientPower. […]
Yesterday Mike went off to have a bone marrow aspirate, Dr B. wants to check what is going on with his bone marrow, whether Mike now has the added benefit of MDS / myelodysplasia / myelodysplastic syndrom and also do some genetic testing on the sample….
One of the side effects of living with cancer is the magnification of experiences. I see with clearer eyes, hear the noise, the hush and silent voices and feel with a depth that draws tears, laughter and hugs instantly. I am acutely aware of time, careful to invest in it with heart and mind. I… Continue reading The Caveat
Grandma benefits include watching kid movies with the little ones! I’ve seen “Moana” at least 25 times, and many, many other classics of course, but the one that I have slowly fallen in love with is “Bolt”. It’s a story about a girl and her dog, Bolt, who are the “actors” in a superhero cartoon. … Continue reading Barking at the Moon