I’ve started writing on Medium.com which means I’ve stopped writing here. In addition to that, I was cancer free from my transplant till my 5th year anniversary – almost to the day. With that said, below area few links to my most rece…
It’s been two months since I last published a blog and let me tell you this, it has been quite the two months. After having this wretched disease for over five years, I thought little would surprise me. Well, I expected the whole looming death part to have a different trajectory to the routine I […]
Well, gang- This Velcade/Revlimid treatment has really clobbered him.Over the course of 8 days, he was admitted to 2 separate hospitals overnight.His neuropathy started traveling up his legs, just below the knees.He gets extremely dizzy and almos…
He had been feeling very weak and woozy since last week. He basically spent the weekend in bed.
On Monday, we headed into Bogalusa to have his weekly blood work done. I dropped him off at the door to shop and returned to find out that he couldn’t make the walk to the lab. They kindly gave him a wheelchair.
Yesterday was a FULL day. He had an MRI appointment at 11:30 at the hospital. Then, the Cancer Center nurse asked us to come right over. She had looked at his blood work to see that his Potassium was way down.
So, he got his Velcade injection, followed by a 2-hour infusion of Potassium and liquids. (Saline) Our Oncologist was on vacation (again), so one of his associates gave him a prescription for daily Potassium supplements.
He felt GREAT last night.
He felt GREAT this morning. Got out of bed, made his own breakfast, watched television, then got up, started to walk and got dizzy.
There’s no doubt that his blood pressure dropped and he was too much in a hurry to get moving. So…. he’s promised me that he will sit for awhile. Slowly stand for awhile. THEN walk.
So, this is all very frustrating, but we seem to be getting somewhere with the Potassium and Fluid infusions. And happily, there seems to be a better communication with his health care team.
Back to the Cancer Center on Friday morning for Velcade, then he’s got the next week OFF. YAY!
Well it’s been a real struggle. Apart from the transplants this may have been one of the toughest regimes I’ve been on. But it is working and so it gives me the oomph to get through it. My results have been as follows. I started on about kappa 2,500. After round one the levels went […]
Dom is having a pretty rough way to go during this treatment. Actually, Thalidomide was like a walk in the park compared to Velcade, Revlimid and Dex.
His blood pressure is all over the place. He’s been on blood pressure medication for many years. Our family doctor took him off of it while he’s going through this.
A typical morning:
Gets out of bed at 8 am. While watching television, sitting on the couch, his blood pressure is 130/80. GREAT.
Gets hungry. Walks with his cane 20 feet into the kitchen. Grabs a bite to eat, then hobbles back to the couch. Starts feeling woozy. Blood pressure has dropped to 60/something.
An hour later, blood pressure returns to normal.
He cannot function with these fluctuations. He’s also getting flashes of color in his peripheral vision from time to time.
I’m doing all of the driving. We’re both very tired. Drive into Bogalusa, LA every Monday for lab work. Velcade injections in Slidell on Tuesdays and Fridays. Drive into NOLA to see Dr. Safah at the Tulane Cancer Center every couple of months. Monthly infusion of Zometa. Here’s a look at this month:
So, we’re hanging in there and sure looking forward to finishing this treatment and get on with the transplant.
Dom will be finishing his 4th week of Chemo on Friday…. then off for an entire week.This Velcade and Revlimid have been tough on the poor guy. His blood pressure got very low, so he cut way back yesterday.Needless to say, heads exploded at the …
Dom woke up, took his Revlimid and Steroids (Dex), and we drove into Slidell. Got his Velcade injection and his drip of Zometa…. very quick… in and out in no time at all.Our patient feels better than he has for a week. Using 2 crutches …
Dom started his Revlimid on Monday. His hip felt OK…. hurt, but nothing horrid.Went in Tuesday for his first Velcade injection…. in and out in no time at all. Also took 5 Steroids.Wednesday morning rolled around and he couldn’t walk. &n…
Hi gang-We had a rough couple of weeks dealing with securing Dom’s Chemo medication, but we’re all set now.He took his first dose of Revlimid this morning.Will be getting his Velcade shots on Tuesdays and Fridays…. 2 weeks on- 1 week off.Daughter Chr…