Still moving forward…

Still losing some weight, taste buds still broken. But I’m getting there slowly. Slowly is the problem, I’m wayyy too impatient. (Like that’s a big surprise!) Won’t be going back to work for another month and a half because of the stem cell transpla ...


Time to think

It’s been a funny few weeks with a real mix of emotions. Overall I feel like it’s been quite a good few weeks….strange really as I’ve had a week with a pulled muscle so bad I would put it on a par with labour (yes that bad!). It involved the compulsor ...


Skin peel

Alright, here’s something I didn’t know. My chemo drugs were gemcitabine, busulfan and melphlan. My skin got darker in places and started peeling. Not that bad but now I’m peeling all over now, even the palms of my hands! Last PA said “oh, yeah, you ...


Feb 7, day ?

Still on the mend. Walked a small block yesterday at home but at a vigorous rate and my muscles are paying for it now! Taste buds getting a little better, ate fried cat fish Yesterday and salmon today. I’m going to try to be a working person in two weeks or so. I wal ...


Feb 1

Today had final blood and urine tests. I’m clear of myeloma! Heading home on Friday! I’m due back for checkup in two months.

Day 30, Jan 27

Still sleeping better and better. Ate a frozen dinner, spaghetti, the whole thing! 1st time! Dr appt moved to next Wednesday. Not so happy about that. Walked twice around the whole rv park. good day today

Day 27,  Jan 24

I can sleep all night now, sometimes with the aid of pills. Appetite is better, nausea is a little less of a problem. Met with Dr. yesterday. She said I did better on the harsh regimen than anyone else. Heck yeah I’m braggin! I meet with her again next Monday, and I ...


So much to do, so little time

Now I know it’s the same for everyone but I’m really struggling at the moment to find enough hours in the day. Thank god I’m not back working yet! What with looking after the kids, trying to organise the ball and being ill, I just can’t quite keep up! ...


Day 24  , Jan 21

Yesterday was wayyyy down, very tired, nauseated, couldn’t walk much. Leg cramps kept me up all nite. Had an appt this am and had to get a unit of potassium. Wheel chair going in and energetically walking out! My weight still going down… I eat, but it tastes so ...


Day 22, Jan 19

Days are up and down as are white blood cell counts. 2.8 now. Yesterday very nauseated and tired, slept poorly. Today much better and walked longer and faster. Taste buds still trying to make a comeback!

Day 16, Jan 13

Came home to the rv and had a bad nite due to back pain, but I’ve got pills for that . WBC went back up, it tends to waver a lot. Great to be out of MD!!! Still can’t eat much, but as soon as taste buds come back I should “fluff” up just fine. ...


Day 11 — Day14

Day + 11, Jan 8 ~ Day + 14, jan11 Day 11, Jan 8 Yesterday was an ok day. Nausea is still around as well as this mucositis coating my tongue and throat. Makes everything tastes like some kind of metal . My numbers are still soaring. 1.96 today for the white blood cell count ...


Day 1o, Jan 9 — Day 11, Jan 10

It took me about 12 minutes to type the subject line. My brain is so scrambled from the delautid!!! Anyway , yesterday my white blood count was reported as as being about 1.9 and today, no telling. Its rising by leaps and bounds, which is great!!! A large building was impl ...


Day 1o, Jan 9 — Day 11, Jan 10

It took me about 12 minutes to type the subject line. My brain is so scrambled from the delautid!!! Anyway , yesterday my white blood count was reported as as being about 1.9 and today, no telling. Its rising by leaps and bounds, which is great!!! A large building was impl ...


A Belated ‘Happy New Year’

Well after my last post, I’m pleased to say that nothing changed for me and that New year, whilst pretty uninspiring, was not a miserable occasion or a time where I felt like I had nothing to look forward to….result! Instead I just begrudged my wonderful husband ...


A turning point…

Day +10, Jan 7 Well, it’s finally happened, the white blood cell count has begun to rise. For several days it was .1 and this morning its .4. The dr predicts this will increase very fast now and will easily reach 1 point. This is enough to begin to fight infection. A ...


Day +9, Jan 6

Not yet, but close. I can feel it. Had laryngitis early morning and ok later today. I am on some kind of sugar glucose now so that is a food of some kind. Still taking the neupogen shots to encourage cell growth. Attitude better. Maybe blame it on family visit, baby brother ...


Day +8, Jan 5

. Skipped yesterday, Day 7 Whiny Day. White blood cells have not kicked in. Mouthsores have closed enough up up my throat so i can’t get fluids or solids down. Going without drinking or eating for 3 days is beginning to wear on me. Before all this I had all the energy ...