Looking back … and forward …

2011 was definitely a rollercoaster year for us in terms of emotions.  We had some significant events – some good and some bad -that changed our lives but 2011 was a good year in terms of Alpesh’s health and that is always a tremendous achievement considerin ...


Kappa/Lambda Ratio

I have had numerous people ask me about Alpesh’s latest bloodwork results to see if the Kappa lightchains went up or down so I wanted to make sure I got the results on the blog as soon as possible.   The suspense is all over … they went down, very slightly, bu ...


Up Again

Our celebration last month from the great bloodwork results appears to be short-lived unfortunately.  Alpesh’s kappa lightchains are back up again to 28 mg/l!  That’s a big jump and we are completely baffled as to why this is so much higher than the month before.  The ...


An impromptu bone marrow biopsy pays off …

On Friday May 20th, during Alpesh’s monthly Dr Z appointment, we convinced Dr Z to do an impromptu bone marrow biopsy to ease our concerns over the fluctuating kappa lightchains in the blood.  Those things look painful so I am not sure I would have been up to a ...


Great Start …

It’s a short and sweet post this month.  Happy New Year to those we haven’t spoken to! We just had a Dr Z appointment last week and he confirmed that the 24 hour urine test was completely normal with no trace of M protein. Wonderful, wonderful, wonderful. Alpesh is ...


Goodbye 2010 …

We hope you all had a great holiday season!  Now that all the festivities are drawing to a close, we wanted to share a quick update before we bring in the New Year.  Latest blood work remains unchanged.  The Kappa lightchains continue to be higher than normal but since th ...


Two years and counting …

October 6th 2010 went by and I don’t think Alpesh or I even acknowledged THE day when two years ago, we learned of his diagnosis – shame on us!   We didn’t even stop to think that two years ago we weren’t even sure he’d make it this far … it’s scary how we al ...


Quick Update

Alpesh met with Dr Ansara, his endocrinologist and latest bloodwork indicates that vitamin D counts are low (he had stopped taking the supplements due to the unexplained darkening of the skin but it looks like he has to start again). We also noticed that when he was on 75mg ...


Up and Down We Go …

Firstly we wanted to thank you all for all your supportive and encouraging messages after the fabulous PET scan results we got in July – we were inundated with feedback. Thank you so much! So, here we are in hot, hot, hot August. We had a wonderful time in beautiful Co ...