Tag Archives: multiple myeloma

Daisy RIP

Posted on April 24, 2012 by Sander

Tonight my dearest cat Daisy died. Her death-battle lasted almost a week. She was very brave and purred every time you gave her some attention. I’m happy she didn’t hide out in the garden. I found her this morning in the garage under the table behind some crates ...

While I remember

Posted on April 23, 2012 by feresaknit

I was going to share intimate details of where and when I’ve been poked and with what (oh er Mrs!) but decided I’d save that for later and instead tell about forgetfulness while I remember. As I’m sure I’ve said previously, well I think I may have, ...

Hexagoning and Needles

Posted on April 19, 2012 by feresaknit

While I have a bit of time on my hands I decided it was about time I shared my finished hexagonal baby blanket.  I have been unable to knit today!  {Sharp intake of breath} Don’t panic – I feel fine but my knitting is feeling decidely soggy following an unf ...

I need a foot rest

Posted on April 17, 2012 by feresaknit

This is what I can currently see, although not at this exact moment obviously, on the back of the toilet door when I use the facilities. This raises two points - 1)  No we don’t have this on the back of the toilet door at home.  I am indeed currently in the Royal o ...

Beautiful Day

Posted on April 16, 2012 by Sander

When I read my national newspaper on Friday, my eyes feel on a pagebig article on de the cd of  Wieb Zigtema. Pleasantly surprised, because Wieb and me we played in several band in the en of the seventies. Wieb lives in my village, so we meet on occasion in the supermarket ...

Tattoo

Posted on April 13, 2012 by Sander

Since yesterday I have my first tattoos. Three small dots, enough for me. Furthermore I have been decorated with fine purple stripes. After my intake and CT scan I have been marked for the the radiations that are to come. I will be called soon for the schedule. I look forwar ...

Thankful Thursday – 18 Months Post Transplant

Posted on April 12, 2012 by Linda

On March 28th it was that time again...time to head out to the Duke ABMT Clinic for a visit with Dr. Gasparetto. Though deep down you are always a bit anxious, praying for continued complete response and no detectable M-spike, we also always look forward to seeing the same f ...

Update

Posted on April 11, 2012 by Sander

Yesterday I had my 3rd chemo. For me it was a glorious day, because I was self-supporting. For the first time in weeks I drove to  Amsterdam by myself. It was very rewarding. When I got home I was tired but quite pleased with myself. Since about a week I´m on a continues d ...

Going Loopy

Posted on April 9, 2012 by feresaknit

Have you seen the film Julie and Julia about the young woman who decided to make every recipe in Julia Childs’ book and blog about it?  I seem to remember seeing a blog where someone was knitting every sock in a sock book.   Now although I am quite infatuated with C ...

Before our journey ends…….

Posted on April 9, 2012 by Sarah

Exactly 18 months ago

Clinic Appointment on Friday 13th !!

Posted on April 6, 2012 by wendyduffield

My next clinic appointment is on Friday 13th April (hope that is not a bad omen) and I will get the results of my blood tests which I had done yesterday.  I have the serum light chain test to measure my kappa light chains (which in my kind of myeloma were the ones that wer ...

It just goes on…..

Posted on April 4, 2012 by Sander

When I was just considering that things were going in the right direction, spot 2 is ruining my easter-weekend. Spot 1 had had radiation and spot 3 was taken along in that action. Spot 4 is a plasmacytoma in my liver, which I can’t feel. I have the feeling that spot 1 ...

Still in my own bed

Posted on April 3, 2012 by feresaknit

I’ve not managed to wangle a holiday at the Royal yet this week.  There wasn’t a bed available when I rang yesterday morning.  The young lady I spoke to said I should ring that afternoon or this morning.  I said that last time they’d just called me whe ...

Don’t Worry About Every Little Thing

Posted on April 3, 2012 by pmdello

Spring morning burn pile = instant catharsis. A week ago Sunday, I awoke early as usual. But the ordinary did not awake with me. Lights glowing on my computer’s printer spun in circles. My forehead was damp. Queasiness played with my belly. I closed my eyes and took some d ...

Miracle Drug? Dare we hope?

Posted on March 31, 2012 by Paul M

One of my favourite tech sites, Gizmodo

Breaking Bad (news)

Posted on March 30, 2012 by bk

Don was resistant to share his diagnosis with his family. Loving them as much as he did, he didn’t want to weigh them down with worries about him, or worse yet, scaring them. So he kept his diagnosis secret, quietly taking his oral dose therapy. He actually got away wi ...

Falling down, off and over…

Posted on March 30, 2012 by wendyduffield

Falling down, off and over….

Falling down, off and over…

Posted on March 30, 2012 by wendyduffield

I had an incredible holiday in Swedish Lapland. I started a post whilst I was there using my wordpress mobile app but never got round to finishing it.  I cant seem to transfer over what I wrote on my phone app to this site but this is something of what I put:- I was going ...

Help

Posted on March 30, 2012 by feresaknit

To cut a long story short – actually I don’t need to do that since it’s a really short story involving a couple of etsy conversations since Wednesday. I have the opportunity for me and my Myeloma Buddies to maybe appear in a UK crafty magazine, possibly in ...

Hiccy Burpy to me

Posted on March 26, 2012 by feresaknit

Hiccy Burpy was on a card I got a friend years and years ago – it featured drunken frogs.  It really amused me.  B says it doesn’t take much but I found this particularly amusing. Its been a lovely bright sunny day (photo does not do it justice) B and I went t ...