Tag Archives: multiple myeloma

Challenges of Non-Secretory MM

Posted on February 6, 2012 by bk

The popular anti-Multiple Myeloma agent Bortezomib (Velcade) has just won FDA approval for subcutaneous injection. This means that it can be administered as a simple injection versus intravenous (IV) infusion. Velcade and it’s subsequent analogs work by being protein i ...

Now I’m not one to moan…

Posted on February 6, 2012 by feresaknit

well B may disagree and certainly would tell me that I don’t moan at the right time – from what he can remember anyway… but moving swiftly on. I’ve never had any complaints about treatment on the haematology ward and indeed have only praise and this h ...

Not too good

Posted on February 5, 2012 by Sander

Since a few days the pain in my leg has returned. Not something to shout about. My stick must be fetched from the attic. Tuesday I have a checkup at the hospital. I will tell my problems and a new track will be started. Here is a picture of my problem. Nasty spot

Royal Holiday Day 3

Posted on February 4, 2012 by feresaknit

Day one of this cycle of DT-PACE finished 2.15 am this morning. With the dialysis only finishing at quarter to midnight on Thursday it was about one by the time it was hooked up. There was actually a slight discrepancy between the amount of one of the drugs on the prescripti ...

Labyrinth IV, Playing God

Posted on February 3, 2012 by Lori Puente

“…you’re the only one who truly understands what he or she needs.” – Gail Sheehy, Passages in Caregiving Gail Sheehy’s Labyrinth IV is Playing God.  “By now you’ve become a seasoned caregiver. You’re good at it and the only person ...

Everything’s coming up roses

Posted on February 2, 2012 by feresaknit

Yesterday’s knitting and crochet should have ended up looking like the rose tea cosy I made last year. And it did last night but not so much after I inadvertently put it in the washing machine this morning on a synthetics cycle. ‘I’ll just bob it in with th ...

Symptoms of Multiple Myeloma

Posted on February 2, 2012 by bk

Multiple Myeloma, as cancers go, is somewhat common although it’s not as common as many cancers and certainly not as well known. The numbers of its victims, on a per capita basis differs from country to country, but the counts remain somewhat constant in terms of prese ...

Labyrinth III, Boomerang

Posted on February 2, 2012 by Lori Puente

“Life isn’t about waiting for the storm to pass. It’s about learning to dance in the rain!” – Unknown  In Gail Sheehy’s Eight Labyrinths of Caregiving, Labyrinth III is the Boomerang. A boomerang is an aerodynamically shaped object design ...

Thankful Thursday: My Dad’s Testimony

Posted on February 2, 2012 by Tara

This past Sunday was a very special day in the life of our church and family.

B punished me for being bad

Posted on February 1, 2012 by feresaknit

He made me watch The Jeremy Kyle show while we ate our lunch!  How barbaric is that?  For those of you not familiar with this high brow presentation it’s kinda like a low brow version of Jerry Springer.  Seriously the people that appear on the show are so, um well, ...

Remission …….this different place

Posted on February 1, 2012 by Sarah

Several blogs have been

Mysterious Cravings

Posted on February 1, 2012 by bk

One of the most peculiar symptoms that I’ve experienced since getting Multiple Myeloma is the cravings. From what I have described, my wife says it reminds her a lot of when she was pregnant; she had peculiar cravings for things that never relented, even if she satisfi ...

Changing Cytogenetics

Posted on January 29, 2012 by Lori Puente

“The rules of the past no longer apply.” – Ken Anderson, MD, Dana Farber An interview with Ken Anderson at the 53rd ASH Conference on New Therapies and Changing Cytogenetics, that might be of some interest and value to those of you with abnormalities that w ...

Deja Vu DT-PACE

Posted on January 28, 2012 by feresaknit

Yesterday we went to our clinic appointment to find out how things were going. We bumped into Sean in the waiting area, which is always nice, along with a couple of ladies who also have myeloma. As it turned out the results of the bone marrow biopsy weren’t back but ot ...

Dr. Tricot, Iowa

Posted on January 27, 2012 by Lori Puente

Guido Tricot, MD, PhD, is the director of Holden Cancer Center’s Bone Marrow Transplant and Myeloma Program at UI Hospitals and Clinics. He specializes in multiple myeloma and has been researching and treating this type of cancer for over 20 years. Dr. Tricot, who had been ...

Update: Leukemia and Lymphoma Society Co-Pay Assistance Program

Posted on January 27, 2012 by Big EZ

Linda and I just returned from the Cancer Center after again paying the doctor's co-pay. We dropped off a prescription (again), then waited (again) for it to be filled and then (again) said "yes, please" as the pharmacist (again) asked us if we wanted to use express pay for ...

Jack Aiello Interview

Posted on January 27, 2012 by Lori Puente

Andrew Schorr: Are you optimistic? Jack Aiello: I’ve said to patients for the last 10 years, if you’re going to be diagnosed with myeloma it’s a lot better now than it was 15 years ago. And that holds true, year after year after year… Thanks David at ...

This is how it goes…..

Posted on January 22, 2012 by Sarah

I check the blogs of several other Multiple Myeloma caregivers, and patients, and in doing so realized that I hadn't written anything in almost a month. That's good! Means that things are really pretty quiet on this MM front. My honey finally recovered from the maladies that ...

Me Bum’s Sore

Posted on January 22, 2012 by feresaknit

Okay not so much now but Wednesday and Thursday if I sat down without thinking about it and pressed up against a cushion in the wrong manner it made B jump. Not so much the sound of me actually hitting the cushion more the yelp I emitted. How come I had a sore rear end? Well ...

The “Head Game!”

Posted on January 21, 2012 by Lori Puente

“Before I even knew what we would do, what the treatment would be, or it’s outcome, I had to get Dave’s head in the game!” – Lori Puente There is a wonderful article over at The Myeloma Beacon, by Kevin Jones where he talks about the battle betw ...