Tag Archives: health

Joggers buttock

Posted on May 17, 2012 by wendyduffield

After doing some much needed weeding in the garden a few days ago I pulled a muscle in my left buttock which caused almost instant pain and disability.  As I limped back into the house in agony my immediate thought was that I wouldnt be able to run in the Manchester  ...

PS Good Results!

Posted on April 26, 2012 by wendyduffield

I forgot to mention in my last post – Another Cold , that I had good news from my clinic appointment on Friday 13th April when I phoned up my haematology  specialist nurse  a week later to get the results of my blood tests. My light chains, both Kappa and Lamba (th ...

Another cold!

Posted on April 25, 2012 by wendyduffield

The day after my clinic appointment on Friday 13th April,  I got another cold which came from nowhere, a slight sore throat, tiredness and then the next day a full on cold when I woke up in the morning.  This is my third cold in the seven months since my stem cell tran ...

Clinic Appointment on Friday 13th !!

Posted on April 6, 2012 by wendyduffield

My next clinic appointment is on Friday 13th April (hope that is not a bad omen) and I will get the results of my blood tests which I had done yesterday.  I have the serum light chain test to measure my kappa light chains (which in my kind of myeloma were the ones that wer ...

Falling down, off and over…

Posted on March 30, 2012 by wendyduffield

I had an incredible holiday in Swedish Lapland. I started a post whilst I was there using my wordpress mobile app but never got round to finishing it.  I cant seem to transfer over what I wrote on my phone app to this site but this is something of what I put:- I was going ...

Skin Rash

Posted on March 13, 2012 by wendyduffield

Since my transplant I have been more prone to itchy and sensitive skin, particularly in the early days on my face and neck which would sometimes drive me insane. Also my eyes are red and itchy at times. Eye drops help lubricate and ease the soreness. This is quite common pos ...

The BUPA Great Manchester Run 2012

Posted on February 13, 2012 by wendyduffield

I am going to do the Manchester 10k run on Sunday 20th May and I hope to raise money for Myeloma UK, the only UK charity specifically dealing with Myeloma. http://www.myeloma.org.uk. “Myeloma UK informs and supports people affected by myeloma and helps improve treat ...

Childhood Vaccinations

Posted on February 7, 2012 by wendyduffield

Yesterday I saw the practice nurse at my GP surgery to start a programme of re-vaccinations following my stem cell transplant which wiped out all my immunities because of the high dose chemotherapy I was given prior to getting my own stem cells back. The, chemotherapy destro ...

A Bad Dream

Posted on January 30, 2012 by wendyduffield

A few days ago,  I dreamt that my hair was falling out in clumps and that I had to ask someone to shave it off for me. It was a horrible panic stricken dream that I doubt I would have had before December 24th 2010 which is when I was diagnosed with multiple myeloma and my ...

Welcome to my blog

Posted on January 29, 2012 by wendyduffield

Welcome to my blog, I finally had the urge to write about my experience of living with myeloma  13 months after diagnosis.   I have now been told I am in remission after a stem cell transplant at the beginning of September 2011 and my challenge now which I intend to shar ...

Shingles Still Not Much Fun for EZ

Posted on December 29, 2011 by Linda

Just a little update on EZ's health

One Year Post SCT Fast Approaching

Posted on November 16, 2010 by ndmyeloma

December 4 will be one year post stem cell transplant and ll seems to be going well. My hair returned within 3 months, energy level is slowly returning and the M-spike remains very low. Emailed my hematologist at Mayo asking if I should come back at one year and she said i ...

Indian Spring?

Posted on March 9, 2010 by La Cootina

Friday night I had dinner with Gracie's humans, a lovely dinner highlighted by fresh Gulf shrimp from their recent trip. My appetite is still pretty small, but I will always make room for fresh shrimp. It is the one food I think I could eat til I burst, and showing any restr ...

Happiness (Reconsidered)

Posted on February 23, 2010 by La Cootina

by Judith ViorstHappinessIs a clean bill of health from the doctor,And the kids shouldn't move back home formore than a year,And not being audited, overdrawn, in Wilkes-Barre,in a lawsuit or in traction.HappinessIs falling asleep without Valium,And having two breasts to put ...

Kevin B ND Myeloma 2010-02-16 14:07:54

Posted on February 16, 2010 by ndmyeloma

Drug Safety Communication: Erythropoiesis-Stimulating Agents (ESAs): Procrit, Epogen and Aranesp

D3 Post Transplant!!

Posted on December 7, 2009 by ndmyeloma

Today, December 07, 2009, is day three after stem cell transplant. I go from the transplant house to Methodist’s Hospital every morning at 1000 CST for blood work and checking the Hickman Catheter. On Day 1 (Saturday), I went over to the hospital and had the bllod work ...

H1N1 and Stem Cell Transplant (subtitle – A Journal Article In the Making)

Posted on November 21, 2009 by ndmyeloma

I had the cytoxan “pulse” on Oct 30 and 31, the cytoxan chemo was designed to push back the myeloma before the stem cell collection. Starting on Nov 1 i was given a daily injection of growth factor (neupogen) to mobilize the stem cells. On Nov 3 (Tuesday) my ne ...

Stem Cell Harvest – Day 1

Posted on November 10, 2009 by ndmyeloma

Today was the start of the stem cell harvest process, all seemed to go well. My appointment was for 0800 CST but did not get in until 0820 and was off the machine by 1400. Mom was with me most of the day, I did get a nap in for about an hour or so. I had to lay very still ...

All Primed Up With Nowhere To Go!

Posted on November 10, 2009 by ndmyeloma

I finally got the call from the BMT Nurse today, my CD34 counts were finally high enough to begin harvesting tomorrow! So far I have been pulsed, purged and now primed. I added the purged and primed as my own descriptors. The pusing was by the use of cytoxan to help drive ...

STEM CELL TREATMENT BEGINS!

Posted on October 26, 2009 by ndmyeloma

Today was my first day of the Stem Cell Treatment process at Mayo Clinic. The day was filled with tests and examinations. My day started at 0730, I reported to the Transplant Center and picked up my appointment schedule and instructions. My next stop was the lab for urine ...