Maintenance is the way to go …

Posted on March 31, 2012 by alexfl

I had a hard time entitling this post. There are always dramatic titles for when things go badly but when things are going well, every title seems so “boring”. Please don’t think I am complaining that we are blessed with continued remission - far ...

Status Quo

Posted on February 7, 2012 by alexfl

February already? My goodness! No January update since there wasn’t much to report really. Alpesh’s bloodwork continues to remain the same. The ratio of the kappa/lambda lightchains did go out of range very slightly but since there’s no M protein ...

Looking back … and forward …

Posted on December 31, 2011 by alexfl

2011 was definitely a rollercoaster year for us in terms of emotions. We had some significant events – some good and some bad -that changed our lives but 2011 was a good year in terms of Alpesh’s health and that is always a tremendous achievement considerin ...

What are we thankful for?

Posted on November 29, 2011 by alexfl

For those in the US, we hope you all had a great Thanksgiving Break! We certainly did! It was so nice to have a few days off to spend with family and friends. We also got the added bonus of glorious weather here which was the icing on the cake. Due to the Thanksgiv ...

Kappa/Lambda Ratio

Posted on October 31, 2011 by alexfl

I have had numerous people ask me about Alpesh’s latest bloodwork results to see if the Kappa lightchains went up or down so I wanted to make sure I got the results on the blog as soon as possible. The suspense is all over … they went down, very slightly, bu ...

Up Again

Posted on September 30, 2011 by alexfl

Our celebration last month from the great bloodwork results appears to be short-lived unfortunately. Alpesh’s kappa lightchains are back up again to 28 mg/l! That’s a big jump and we are completely baffled as to why this is so much higher than the month before. The ...

August Update

Posted on August 24, 2011 by alexfl

No updates in June & July because I was in England and, quite frankly, I really wanted to get away from it all and not think about the “normal” stresses of life! Alpesh and the boys joined me in England in July and we had a wonderful time catching up with fam ...

May Update

Posted on May 17, 2011 by alexfl

Another overdue update – I am really slacking now!! The main reason for lack of update has been that we have communicated this information to most of you through phone calls or e-mails and also, quite frankly, there has been no real conclusions with regards to ...

A Much Overdue Update …

Posted on March 10, 2011 by alexfl

Apologies for lack of February update – good excuse though – both Alpesh and I were enjoying ourselves in beautiful India! My gorgeous niece decided to get married in style … a destination wedding in picturesque Kerala no less. As expected the wedding was out ...

Great Start …

Posted on January 26, 2011 by alexfl

It’s a short and sweet post this month. Happy New Year to those we haven’t spoken to! We just had a Dr Z appointment last week and he confirmed that the 24 hour urine test was completely normal with no trace of M protein. Wonderful, wonderful, wonderful. Alpesh is ...

Goodbye 2010 …

Posted on December 31, 2010 by alexfl

We hope you all had a great holiday season! Now that all the festivities are drawing to a close, we wanted to share a quick update before we bring in the New Year. Latest blood work remains unchanged. The Kappa lightchains continue to be higher than normal but since th ...

Do you believe in fate?

Posted on November 30, 2010 by alexfl

Sima decided that it was time I wrote something about myself instead of being written about … so here goes … Firstly as a quick recap, my November results haven’t changed much over the previous months except that my Kappa free light chains continue to rise again this ...

Two years and counting …

Posted on October 17, 2010 by alexfl

October 6th 2010 went by and I don’t think Alpesh or I even acknowledged THE day when two years ago, we learned of his diagnosis – shame on us! We didn’t even stop to think that two years ago we weren’t even sure he’d make it this far … it’s scary how we al ...

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