Nathan and Natalie have been asking to sleep over for quite a few months now and we finally made it happen last week. To say they were excited is an understatement!
Today, Thursday, was much like yesterday. No new side effects yet. Steroid is still being awful but they give me things to counteract it. I had my first full night of sleep with a little help from my friendly klonopin. Unfortunately, the aide came busting at 7am screaming th ...
Well today,Tuesday, was the official first full day of the lovely cocktail I am taking but first they gave me anti-nausea meds, fluids and my favorite…..DEXAMETHASONE!! I hate that stuff. We do not get along! So they infuse the cocktail over 24 hours so you tend not to ...
On Sunday, January 8th, EZ's Mom, Erna, had a fall. She was in her stocking feet, changing clothes after church, and attempted to step up on a piano bench to reach a shelf in her closet. Needless to say, she slipped and toppled over along with the bench. She got a nasty brui ...
We recently spent a very special three days with Leah and Emery at the cabin. It is amazing how quickly little ones grow and change. Em was already doing new things since we had seen her at Christmas less than two weeks ago! She has a wonderful disposition and is such a happ ...
So much has happened in our lives since our daughters began this blog in 2010 to chronicle Ernie's journey with blood cancer. We thank both of them so much for working together to design "Walking With Big EZ" and for teaching us how to use it as a vehicle to not only communi ...
Just wanted to flashback to a fun night we had over at EZ's brother's house during the holidays. Twenty four of us gathered for dinner at Marvin and Laurie's and we all had a blast catching up. Decided to make a few collages that would help share more of our Christmas memori ...
There is never a question around the Baker house as to how we will spend December 31st as it is EZ's birthday! This year we treated him to some of his favorite food requests, and a day spent enjoying family. The morning began with a visit and Happy Birthday song from four ve ...
Jani and I got up at o'dark thirty for Jani's departure from Mackay Idaho to Greeley Colorado this morning. Jani and I have been like VELCRO for the last 7 months - so, this is HARD! W both cried!We drove over to Sammy's to say good-bye to Dad. He was waiting in his truck fo ...
My hair is coming in thicker now and my head is not nearly as cold as it used to be.Jani and walked the BLM Road just above the Cattle Guard on the Mine Hill south. I just went 0.5 miles out and 0.5 miles back to Jonah for a total of 1.0 mile. Jani and the dogs went on to th ...
We love to take walks with the dogs and the family, so we made sure to include this as much as we could while EZ's parents were here visiting for Christmas. Unfortunately we had to deal with a few days of rain, but on this particular day it was beautiful. The dogs almost out ...
Jani and I drove Jonah up the Mine Hill to the Shay Trestle Road and parked. We walked slowly up the gentle 5 % grade for 1/2 mile and then 1/2 mile back. We started at 8,245 feet and walked up to 8,363 feet (a gain of just 118 feet). The white line is the route we drove and ...
On Saturday, December 18th Nick took us out to the ballgame...I mean basketball game! It was a ladies night out for my mom, Leah and I to watch UNC vs. ASU. What's a mom to do in order not to show favoritism when one of her children graduated from UNC and the other from ASU? ...
I slept like a rock last night from 7 PM to 4:30 AM. My chest wall is SORE to the touch - I guess driving all day yesterday was a workout for very unused muscles. I still have a bit of neuropathy in fingertips, especially on my left hand. I've continued to take my L-Glutamin ...