Well, I’ve had to move on. Pom didn’t work very well. My levels went up high – mid – 2000s and even though they then stabilised, there wasn’t any sign they’d come down. I was very fatigued, but otherwise coped OK. Easter was a bit manic – my consultant was away and while we knew […]
Before I started the current regimen, a PET scan last April 9 displayed five different lytic lesions, three of them in the spine. Last Wednesday’s PET scan showed that all five lesions are significantly decreased, and most are gone. One isn…
Friday, August 19, 2016:
Wednesday I brought a Mayo Clinic blood draw “kit” to the local clinic, where they drew the blood and shipped it overnight back to Mayo. Last evening the results showed up on Mayo’s patient portal, and I’m happy!
Since…
Before June budget stuff here’s a picture of Donner Lake.And here’s another. It’s very warm here in Northern California with not a lot of change over the next week. Tomorrow and Saturday are even hotter. So we will need to put in our window air conditioners. This will raise our electric bill but it’s too […]
Wednesday, May 25, 2016:
My sweeties and I bought a nice bouquet of yellow roses to celebrate my latest treatment results. In the last four weeks on Pomalyst (pomalidomide)(POM) and Darzalex (daratumumab)(DARA) my IgG has dropped 20% from 807 to…
We are close!!!! 11 more days till we reach the 3-year mark of WALKING INTENTIONALLY EVERY SINGLE DAY! That’s 1,095 days if my math is correct. Today was quite cool and windy with rain on the way. We walk in the rain and wind and snow(rarely). We are lucky to have a park with a […]
Three weeks ago I whined mightily about taking DEX. The worst problem was acid reflux the second night after taking it, but there were other issues too. I’m happy to say that I have had better experiences since then.
Acid reflux:
Lots of …
Dexamethasone (DEX) is a part of many myeloma regimens – my doctor says “everything works better with DEX.” I’ve taken it before, and not liked it then, but this most recent experience is something new indeed.
Sunday night I took the “usual” 40 …
Lots has happened since my last post, and this is a record of those events. I have to write it somewhere. It’s interesting to me, part of the journey, but you’ll be the judge. It’s mostly whining.
Background for the reader: Las…
It’s been almost a year since I’ve written a blog. And it isn’t because I have not wanted to. I could tell you that it is because I’ve been so busy loving my children and husband. Or that I haven’t had time because I’ve been focused on taking care of my home, my family and […]