There were two events yesterday, two and a half really, which proved to me, if I needed anymore proof, that I now have absolutely no decorum whatsoever. The subject in question, was of course, my faeces or my lack there of. Everybody requires a little bit of context and this is mine. I am currently […]
There comes a time in everybody’s life when they have to surrender. They have to give in. Their hands are tied. They have to retreat. They are getting ready to wash their hands. I am at such a point. I am at the end of my tether. I am waving the white flag. I am […]
Few people, unless they have been in the position where they have had to take strong drugs, will truly understand how said drugs can disrupt your body. Even when you think you have been there and got the t-shirt factory, it can still take you by surprise. Despite the fact they are designed to make […]
After a lengthy period of the trots, I am informed that some individuals, may experience constipation. When one is taking six drugs on top of other drugs, which is said to lead to blockages, a person may experience constipation. When a body subject to change, experiences a lot of change, I imagine, a human, may […]
I am going to spend my day waiting to get poorly. If that doesn’t happen today, I am going to spend all day tomorrow waiting to get poorly. I have been told what symptoms to look out for over and over again; the squits, vomit, mouth pain and fatigue. Done. Squits, vomit, mouth pain and […]
So, how do I feel? Just to remind you, I’m in Cycle 1 of Bendamustine/Revlimid/ Dex, which began 7 May 2013. I have only 5% normal bone marrow function with 95% plasma cell infiltration.You only received the Bendamustine IV Day 1 and 2 of the 28 …
Better Out Than In, that’s my motto. It’s my motto for every aspect of my life; not just for my faeces. Holding stuff inside you, I find, just manifests into something much bigger, heavier and uglier, and before you know it, you look just like the woman in the new advert for Senokot. Uncomfortable and […]
I backed my car out of the garage and neatly ran over a folding aluminum chair that was holding a number of car washing accessories. The aluminum tubes making up the chair wrapped themselves around the axle, and turned with the motion of the wheel. It sounded like a blind man trying to find his […]
Tuesday, 19 Mar 2013: I’ve taken 15 doses of Pomalidomide (Pomalyst) in Cycle 1 for my relapsed myeloma. I should have had my blood tested today, but Dr. Padavanija is out-of-town and they scheduled me for Friday, 22 Mar 2013 at St. Luke’s Hospital in Twin Falls, Idaho.
I’ve decided that I’m way too puffy and effected from Dex 40 mg weekly on Tuesday’s, so I lowered the dose to 30 mg today, dividing it in 2 doses (breakfast 15 mg and dinner 15 mg). I’ll discuss this with the doctor on Friday at my appointment.
Again, the St. Luke’s Hospital MSTI Boise Pharmacist called today to check on my Pomalyst side effects. Not much different than last week except I am constipated.
- burning scalp (improving a lot)
- creepy legs (had before I started Pomalyst, but seems worse at night – haven’t taken much oxy this week (maybe two doses of 1/4 tab).
- increased neuropathy of left leg especially from knee to groin – was about a 2 (1-10 scale) prior to Pomalyst and now 4. I am attributing my left hip pain to neuropathy now since all of my tests (plain x-rays and MRI were normal). At times, I had right hip pain too.
- tired, especially after taking – serious fatigue each afternoon – can’t do anything. Easily out of breath, but lungs are clear with no cough. Don’t let these walk photos fool you in to thinking I’m leading a normal life – I AM NOT!
- constipation – working with 2-3 Senna-S nightly and 2 Phillips Magnesium tablets nightly – without much success. Experience GI reflux on dex day (Tuesday).
Jani, Zoe, Kady, and Kemmer with Mt. McCaleb in the background – Jani ended up walking the Kemmer and Zoe (sisters from the same litter who will be 5 years old on 6 Apr 2013) all the way home and I drove from the Cattle Guard with 12 year-old Kady.
Monday night into Tuesday, I had terrible neuropathy and creepy legs and was unable to sleep…most probably from the Mine Hill walk Monday.
Tuesday, 19 March 2013: I was too tired to do much today. Jani went with Ron rock hunting.
She found a geode.
And a lucky horseshoe for me!
If one were to rewind three months to the last days of PADIMAC, I believe I would have said that there was one thing I would never take for granted again. It’s something every able bodied person can do, even babies. At the time however, I was not able bodied. I was stuffed. Fast forward […]