It’s been two months since I last published a blog and let me tell you this, it has been quite the two months. After having this wretched disease for over five years, I thought little would surprise me. Well, I expected the whole looming death part to have a different trajectory to the routine I […]
I was tempted to entitle this blog ‘My Life Lived in Fear’, but after some reflection, I decided that some could perceive that to be melodramatic. That said, I am prone to a dash of daily sensationalism, so I couldn’t not tell you. The blog’s working title concisely and accurately summarises this current stage of […]
On the days when I feel like there is an improvement in my mental capability, I remember that my mobile phone device is full of blogging material of questionable quality. It’s a responsibility, for I then feel tied down to telling what a lesser person would deem an uninteresting story, whilst simultaneously knowing that I […]
WARNING – This blog contains some straight forward, no nonsense complaining and absolutely no humour whatsoever Yesterday was my first day of treatment for Transplant Number 2, officially known as Day-6. Yesterday, will unofficially be known as my worst experience of NHS care. Yesterday was also the day I did something I said I would […]
It is amazing what a difference 24 hours can make. Since blogging last Monday we have had our ups and our downs which we will share with you all soon.
Generally Mike is so much better, not perfect, but a lot better. Like the above comment we will share our thoughts on the subject with you soon.
This morning I woke to find that my Tête á Tête dwarf daffodils have started to bloom.
|Excuse dirty pot….oops!|
A tiny ray of sunshine to brighten a grey winter’s day. Let’s hope our later trip to see Dr. S.B. doesn’t darken our mood.
You know the facts, but you haven’t got a clue about meI Hang Suspended – Boo RadleysCheck up … Hb =11.7 … Neutros = 1.2 … FLC = 55After November’s results, with my light chain scores creeping slowly tediously upwards, I wrote: “Here’s hoping it …
I felt tired. No, it was more than that. All I wanted to do was sleep. I felt hot, but then everyone felt hot because Vietnam is tropical and has a similar latitude to Nicaragua. My squad mates kept trying to rouse me and it was getting on my nerves. I wanted to sleep. They […]
The songs say it to music; If it wasn’t for bad luck, I’d have no luck at all. So goes this year for me. Again I am just home from the hospital, managing again to delay my demise a bit longer. An infection that has me eating Moxifloxicin and Prednisone and sucking oxygen through a […]
Friday morning, 4 April, saw me not-quite-leaping, more like cautiously rolling my stiff self, out of bed at an early hour to go off to volunteer at a Register & Be A Lifesaver [R&BE] stem cell register recruitment event at … Continue reading →
I was almost home from work, walking in the dark along the side of the street. Car headlights from behind […]