The quick deterioration of my movement over the last month, has been an unwelcome surprise and it has been something of nightmares. Cancer I can handle. Being bed ridden and unable to climb into the shower? Not so much. Two months ago, I was worried that my movement had improved to such a point that […]
Picture the scene. You have not seen many people for a while and this is difficult because you constantly seek and need acceptance, attention and love to validate your existence. Your body is weak following weeks of doing very little. You have lytic lesions and as a result, have lost your rhythm. You are bald […]
It is something that has been in the back of my head since all this nonsense started, but this last week, I finally acknowledged the sad truth. I, Emma Jane Jones will never be able to go on a roller coaster again. [sigh] Sure, I was not going on one every week, but I enjoyed […]
There have been few moments since I was diagnosed for me to celebrate. Diagnosis, fractures, chemotherapy, hair loss, nausea and fatigue have been my rewards thus far. Sure, I have celebrated when my paraprotein’s gone down, but with hindsight, my previous celebrations have been premature. I celebrated after the first cycle because I got a […]
Once upon a time, I used to love the snow. I do not love it anymore. The current nationwide obsession with the weather is clearly an overreaction. It may be below zero, but this is not an Apocalypse. For me, and this may also be an overreaction, the snow represents incarceration. I am a prisoner […]
Friday, was a Test Day. For the first time in what seemed like a long time, I made my way to UCLH and let people prod me. The first test of the day, and one that came later than scheduled due to the snow, was the much anticipated MRI scan. In the week leading to […]
It is not a new revelation to say that I am forgetful. I forget most things, especially plans, which anybody would witness if they were able to see my face when my doorbell rings. Today, however, I realised how easy it is for me to forget certain aspects of My Myeloma. I remember it as […]
The FDA has released a new warning against osteoporosis drugs, stating that many of them cause thigh bone fractures. According to NaturalNews, the FDA has issued a new warning for *ALL* drugs in the bisphosphonate family, including Merck’s Fosamax…
Update right leg:Update 3 on lytic lesion right femur from myeloma.This week Tuesday 27th July 2010 I had an appointment with orthopedics to discuss bone progress at the lytic lesion on my right femur and to x-ray the legThe rod and pins are all stable…
Update 2 on lytic lesion right femur from myeloma.
Last week I had an appointment with orthopedics to discuss bone progress and to x-ray the leg.
The rod and pins are all stable.
The myeloma lesion has not reduced; it seems to have increased slightly. As I am only 3 weeks into treatment for myeloma (Rev-lite trial) there is some catch up on lesion/myeloma reduction to go there. I did not expect the lesion to reduce the day treatment started. The bone doctor is reporting back to my Haematologist on this.
Next week I have an appointment for the completion of the first cycle of the Rev-lite trial where I can quiz my Haematologist on all those matters.
I am making good progress with leg strengthening and walking around the home with the big walker. I can put more weight on the leg now.
Next goal is to drive the car. To qualify I have to get in and out of the car, start and run the car (it’s an automatic) and be able to walk a reasonable distance.
Now I’m getting all excited!