Couldn’t sleep at all in the motel. Finally turned my computer on at 2 AM and worked on a genealogy chart for my Gram’s side of the family. Tried hard not to wake Jani, but did at least one time.My guts were not burning at all – it helps to sit up more…
The skin around my Bard Power Port on my right chest is red and irritated. Perhaps I am reacting to carfilzomib, pomalidomide, or just low platelets and Tegaderm cover I had yesterday.I had a rough night with little sleep. I had creepy legs and pain in…
The bruise over my Bard Power Port is healing nicely. Walked Kemmer 0.82 miles. Most of our snow has melted, but the forecast is for snow tonight.
Had a better week in regard to my gastritis and energy level. I’m not sure what, if anything, was different other than the intravenous Aloxi I received on the first day of carfilzomib on 13 Feb 2013. Continue to have trouble with everything going SOUTH rapidly, and took 1/2 Imodium on Feb 18 2013 which almost instantly made me TIRED and cloudy-of-mind.
Kemmer thanking the Szabo’s for her Valentine Card Feb 16 2013
Walk 0.82 miles on 18 Feb 2013.
Held my Fragmin Injection 15,000 units 19 Feb 2013 in preparation for the bone marrow biopsy 20 Feb 2013.
Drove to Twin Falls, Idaho is a driving snow storm in the DARK with Lana. Had trouble finding the road sometimes and didn’t see any deer or elk. Arrived just before 8:30 AM and went to the Infusion Area to have my Bard Power Port accessed and my SPEP (M Spike, Free Light Chains, Protein, Immunoglobulins), CBC, and Chem Panel Labs drawn.
My white blood cell count was low at 1.9 (norms 4.5-11); absolute neutrophil count (ANC) was low at 1.12 (norms 1.9-8.8); hemoglobin low at 10.2 (norms 12-15); and platelets low at 100 (norms140-440). I think all of my values were slightly higher than they REALLY WERE since I was dehydrated from being NPO since midnight (over 8 hours).
LDH was 509 (norms 313-618) and up from my 13 Feb 2013 value of 460.
My creatinine was slightly high at 1.06 (norms 0.52-1.04); my BUN/CR Ratio was slightly low at 9 (norms 10-20); and my GFR was normal at 56 (abnormal >60). Again, I think these values were influenced by being dehydrated from being NPO since midnight (over 8 hours).
From the Cancer Center, we went over to Interventional Radiology for my 10th Bone Marrow Biopsy and my second one with conscious sedation. Lana went with me to drive me home and it was great – we laughed a lot.
I had the same nurse, RN Mendi, as last December and everything was familiar. This picture was taken before any drugs were given and you can see my “tired look” of late.
Kirk Peterson, MD from pathology and his assistant, April, came and I greeted them. After that I don’t remember a thing thanks to conscious sedation with Versed 5 mg and Fentanyl 100 mcg. Dressing over the bone marrow biopsy site on my right iliac crest and I have no pain a the site.
My Bard Power Port always “oozes” a tad after they take the Huber Needle out.
Lana drove me home – it was surreal in that the roads were completely dry and ALL the blizzard snow (3-4 inches) was GONE and DRIED UP as we drove home from 11:30 AM to 2 PM.
Had a long nadir and went to bed at 7 PM. Woke at 10:30 PM with a severe gut ache – took 1/2 Percocet, Zantac, and Senna-S which seemed to help.
February 8 2013: Couldn’t sleep last night and finally got up at 3:15 AM…might as well do something than fret that I cannot sleep. My guts are hurting. I took Pepcid on top of Zantac and Prilosec with a little relief. The burning sensation in my…
Woke this morning in the Twin Falls motel with quite bruise over my Bard Power Port. The area doesn’t hurt as much as I thought it would.Put EMLA cream on and went to St. Luke’s Hospital Infusion Center for my 2nd day of Carfilzomib/Dex. I forgot my no…
Woke to my alarm this morning…so unusual for me that I took my picture!Drove to Twin Falls in a heavy fog with visibility just 2/10ths of a mile for the most part…not very relaxing, especially since I passed at least 2 trucks with limited oncoming …
Drove to St. Luke’s Hospital in Twin Falls, Idaho this morning for my monthly visit with Dr. Padavanija and the beginning of Cycle 4 Carfilzomib/Dex. Roads were dry and the 135 mile drive pleasant.
Waiting for my appointment at St. Luke’s Hospital January 30 2013.
Dr. Padavanija had just talked with Dr. Clay Smith at UCH (Aurora, Colorado) via telephone, so we were all on the same page.
Chilly drive to St. Luke’s Hospital MSTI, Twin Falls, Idaho with temperatures hovering at MINUS 12 degrees. However, the roads were dry, skies blue, with sunshine.Had blood drawn from my new Bard Power Port for the first time – all went fine exce…
Had a rough night and day with the new Bard Power Port hurtin’ me. Feels like what I imagine an arrow through my chest would feel like~ The new port is quite a bit lower than my previous port.My bone marrow biopsy site of yesterday on my right ili…