Author Archives: suemagoo

Still moving forward…

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Still losing some weight, taste buds still broken. But I’m getting there slowly. Slowly is the problem, I’m wayyy too impatient. (Like that’s a big surprise!) Won’t be going back to work for another month and a half because of the stem cell transpla ...


Skin peel

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Alright, here’s something I didn’t know. My chemo drugs were gemcitabine, busulfan and melphlan. My skin got darker in places and started peeling. Not that bad but now I’m peeling all over now, even the palms of my hands! Last PA said “oh, yeah, you ...


Feb 7, day ?

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Still on the mend. Walked a small block yesterday at home but at a vigorous rate and my muscles are paying for it now! Taste buds getting a little better, ate fried cat fish Yesterday and salmon today. I’m going to try to be a working person in two weeks or so. I wal ...


Feb 1

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Today had final blood and urine tests. I’m clear of myeloma! Heading home on Friday! I’m due back for checkup in two months.

Day 30, Jan 27

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Still sleeping better and better. Ate a frozen dinner, spaghetti, the whole thing! 1st time! Dr appt moved to next Wednesday. Not so happy about that. Walked twice around the whole rv park. good day today

Day 27,  Jan 24

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I can sleep all night now, sometimes with the aid of pills. Appetite is better, nausea is a little less of a problem. Met with Dr. yesterday. She said I did better on the harsh regimen than anyone else. Heck yeah I’m braggin! I meet with her again next Monday, and I ...


Day 24  , Jan 21

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Yesterday was wayyyy down, very tired, nauseated, couldn’t walk much. Leg cramps kept me up all nite. Had an appt this am and had to get a unit of potassium. Wheel chair going in and energetically walking out! My weight still going down… I eat, but it tastes so ...


Day 22, Jan 19

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Days are up and down as are white blood cell counts. 2.8 now. Yesterday very nauseated and tired, slept poorly. Today much better and walked longer and faster. Taste buds still trying to make a comeback!

Day 16, Jan 13

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Came home to the rv and had a bad nite due to back pain, but I’ve got pills for that . WBC went back up, it tends to waver a lot. Great to be out of MD!!! Still can’t eat much, but as soon as taste buds come back I should “fluff” up just fine. ...


Day 11 — Day14

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Day + 11, Jan 8 ~ Day + 14, jan11 Day 11, Jan 8 Yesterday was an ok day. Nausea is still around as well as this mucositis coating my tongue and throat. Makes everything tastes like some kind of metal . My numbers are still soaring. 1.96 today for the white blood cell count ...


Day 1o, Jan 9 — Day 11, Jan 10

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It took me about 12 minutes to type the subject line. My brain is so scrambled from the delautid!!! Anyway , yesterday my white blood count was reported as as being about 1.9 and today, no telling. Its rising by leaps and bounds, which is great!!! A large building was impl ...


Day 1o, Jan 9 — Day 11, Jan 10

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It took me about 12 minutes to type the subject line. My brain is so scrambled from the delautid!!! Anyway , yesterday my white blood count was reported as as being about 1.9 and today, no telling. Its rising by leaps and bounds, which is great!!! A large building was impl ...


A turning point…

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Day +10, Jan 7 Well, it’s finally happened, the white blood cell count has begun to rise. For several days it was .1 and this morning its .4. The dr predicts this will increase very fast now and will easily reach 1 point. This is enough to begin to fight infection. A ...


Day +9, Jan 6

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Not yet, but close. I can feel it. Had laryngitis early morning and ok later today. I am on some kind of sugar glucose now so that is a food of some kind. Still taking the neupogen shots to encourage cell growth. Attitude better. Maybe blame it on family visit, baby brother ...


Day +8, Jan 5

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. Skipped yesterday, Day 7 Whiny Day. White blood cells have not kicked in. Mouthsores have closed enough up up my throat so i can’t get fluids or solids down. Going without drinking or eating for 3 days is beginning to wear on me. Before all this I had all the energy ...


Day 6: Jan 3

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Well, I can’t swallow anything! Throat is very swollen and pretty painful but Dilaudid helps a lot. Energy levels low but not so bad that I can’t go walking down the hospital hallways and stirring up some trouble! I threaten to break out all the time, IV pole a ...


Day 5: Jan 2

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Dr just left; said I was doing great. Mouth pain is still an issue but I have push button pain meds for that. Ive been getting platelet infusions which is to be expected. I miss my life at home. (Oops how did that get out?) Starting to drink a little today. Guava juice is ...


Day 4, Jan 1

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Started the day with an x -ray and a new automated pain switch to control my mouth pain. Also got wheeled off for a sinus scan and I’m on antibiotics for a low fever. Can’t talk today and can’t eat. Meds control everything pretty well so I’ve got no c ...


Day 3: Dec 31

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Still on dilautid for mouth and throat pain. It works fairly well but forget about walking today. I will figure out something tomorrow. Doing additional breathing exercises to prevent pneumonia. Days are passing way too slow for me, I gotta get busy! Had sooo many naps today ...


Day 2: Dec 30

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Day 2: Dec 30 Fighting major mouth pain right now and just cant eat much. Just got my first shot of delautid, not sure what’s gonna happen … Oh yeah, that worked. I can swallow now Happy times! White blood cell count: 0.6