27 years of good news!

March 25

Happy Birthday to my amazing son Scott!
Happy one year being cancer free!
Happy many many zillions of happy years to come!

Sometime back in Scott’s first year…

Then….. That Adorable baby Boy grew into
This Handsome, Successful M…

March = Multiple Myeloma awareness Month!

MMmmmmmmmm…. lots of M’s there!

M for Myeloma
MM for Multiple Myeloma
M for Major
M for Month
M for March
M for Myeloma March Madness
M for My Myeloma
M for My Multiple Myeloma
M for Menacing
M for Maximum 
M for Mysterious
M for Medication
MM for Multiple Medications
M for Managed
M for Me
M for Momentous
M for M & M’s … mmmmMint ones!
ok, enough Msillyness !

“Here’s Good News from the world of Multiple Myeloma research and Medications:
Dr. Durie, IMF Founder, was interviewed by the Wall Street Journal’s Lunch Break on “New Hope for Multiple Myeloma Patients”

 And March is for another Month of Multiple Myeloma Remission for ME


Mmmmm… this says it all !

My Life in an OCD Antibacterialized Bubble!

This post is for all my friends, family, colleagues, students and people I come in contact with who don’t understand my necessary obsession with sanitation and cleanliness:

Did you know- 
“Multiple Myeloma is a cancer of the immune system, o…

Still winning… one year later

January 10, 2012, one year ago today-

My son Scott had surgery to remove a “mass” in his bladder…
Going into surgery, we weren’t too worried… just look at us…

As his Urologist didn’t think it would be “anything to worry about”

January 16, 2…

3 years ago today I was diagnosed with CANCER

3 years ago: 12-30-2009 
Around 11-11:30am

Jim and I were at Kaiser Hematology/Oncology
Receiving earth-stopping news:

That my 1st bone marrow biopsy on 12-18-2009
Revealed I had high-risk (of course!) Myeloma (who?) blood (what!) cancer (what the?#%$#@+*!!)

Today –> 12-30-2012 I am in Remission :)

I’ve survived countless rounds of oral pill form Revlimid chemo paired with powerful steroids, several rounds of several types of high dose IV chemo, an Autologous Stem Cell Transplant, an entire month of hospitalization in isolation, losing my hair, months of recovery, and almost 2 years of follow up maintenance Revlimid chemo… not to mention what I have been through psychologically… and here I am…  a full 3 years later… grateful to be writing this blog and reporting that I am still winning and dominating Myeloma!

For a quickie re-cap of my cancer story, please see my blog entries from December 2010 and December 2011 (and of course all the entries in between if you really want all the details :)

My recent 12-14-12 blood test results indicated many close to “normal” results.
Although Myeloma still renders me “immune compromised”, I’m feeling pretty good overall. Tried still, some neuropathy still, never really “normal”, but very grateful for my “new normal”!

I have been off maintenance Revlimid chemo since June 2012 and time will tell how long my body can fight off the cancer cells that are destined to return… at sometime… since as of 2012 there is no medical cure for Multiple Myeloma… 

                   A Big Thank You to everyone for 3 years of support 
                               and encouragement since 12-30-2009  

Thanksgiving birthday 2012

I am so blessed and lucky to be alive
and surrounded by love, life and fun  

Cheers to 2013 

and Happy New Year to all my
Blog Buddies 

Julie’s Myeloma Moments 2012-12-12 03:12:00


Just had to do a post on 12-12-12 as I don’t think I will have another date like this in my lifetime…
I’m enjoying numbers and number patterns in a way I never did before all my blood tests!

My 3 year Myeloma diagnosis anniversary is comin…

Julie’s Myeloma Moments 2012-12-03 21:55:00

Hi Everyone :)

Thank you for your continued interest in my Remission status and blog updates! Your support means the world to me!

As of late summer 2012, I officially graduated from monthly Oncology checks to every 2 months.
Next blood tests and canc…

When Normal becomes Abnormal

Hello loyal blog readers!
A sincere thank you for caring about my status and continuing to return here for my monthly postings and musings! (I actually wrote this weeks ago, but never posted it)

I know it’s been a bit longer than usual since I’ve ente…

Of Unsuccessful Celebrations

Seriously…………… !!!!
2012 Vacation (anniversary) celebration fail :/

July 2010:  2 years ago I was pitifully and painfully languishing in isolation at City of Hope Hospital battling for my life… not knowing the outcome of my high dose …

Today is National Cancer Survivor’s Day! Who knew?!

The 25th
annual National Cancer Survivors Day is Sunday, June 3, 2012.
“National Cancer Survivors Day® is an annual, treasured worldwide Celebration of Life that is held in hundreds of communities throughout the United States, Canada, and other participating countries. Participants unite in a symbolic event to show the world that life after a cancer diagnosis can be meaningful and productive…”
Well who knew? I sure didn’t! 
Every time I read something about cancer “survival” or being a cancer “survivor”… I still just can’t fully “connect” to the statement or idea.
Have I never really fully processed that I was diagnosed and treated for a terminal blood CANCER?

Have I “forgotten” all my TRAUMATIC live-saving treatments? Hardly!!!
Am I in denial?

Seriously, I should be fully “in touch” with all of this! But honestly… I feel a disconnect…
I do know I was shocked when I was actually diagnosed on December 30, 2009
I do know I was really affected by all my initial chemo treatment medications early 2010
I do know I suffered from IV Cytoxan chemo June 2010
I do know I suffered from IV Melphalan chemo July 2010
I do know I received my own stem cells back in an Autologus Stem Cell Transplant July 5, 2010
I do know I was very seriously ill and could have died… several times… had I not had the treatments I did
I do know I lost my hair and had a complete visual make over, several times over since

And I do know I have continued on monthly maintenance Revlimid chemo to this day to continue to battle back the Myeloma cells trying to invade and make a come-back
AND I KNOW I AM VERY FORTUNATE TO STILL BE IN REMISSION!!! and approaching my 2 year SCT anniversary!
So to celebrate Cancer Survivor’s Day TODAY and my personal remission since late summer 2010 and other’s battling CANCER along with me-
I am wearing a Tshirt that says in BOLD letters: SURVIVOR

Ok… I am trying to feel this, trying to connect, trying to process I had/have cancer…

Here’s the pictorial of me celebrating Remission at various Cancer events this year:

with my dear friend and avid supporter
S U R V I V O R S! May 2012

Hubby Jim and me
Wow, how can we both be Cancer Survivors?
(not to mention that son of ours
who is further out of touch with this cancer thing than me!)
Next BIG Survivors event:
City of Hope’s giant BMT – SCT reunion
extravaganza with thousands of survivors!

And I mean THOUSANDS!!!
Seriously amazing!!!

Find me and Jim… left corner (I’m in red) 3rd row behind “Welcome” 

Me, my awesome Dr Kogut and fellow Myeloma survivor Jim

Me and Dr Kogut
Mr Awesome himself
Me, being me, showing off my 22 months
Post Stem Cell Transplant button

Ok, so after all I’ve been through 2009, 2010, 2011, 2012
you’d think I would connect with having cancer, right?
Well I do…
when I try to do things like I did
prior to a terminal cancer diagnosis
that’s when I connect with 
as cancer stole my “perfect” health
my energy
my stamina
my get up and go
and my ability to be Cowgirl Julie
So my new hobby is
short distance
Horse Back Walking :)