Hamada and Susie at Recent Family Celebration.
Hamada attending a recent family celebration with courage and dignity, staying for three hours and enjoying an evening of laughter, fun, good music and wonderful food. What a complete star!
Monthly Archives: September 2010
Ra Ra
You ready Salt Lake City? Paws Up... ;)
US 52 Was Under Water
We three drive down US 52 from the east side of St Paul to Rochester once every 28 days for my checkup at Mayo Clinic. It's the shortest, fastest route. Usually we get up at 3:50 am, take an hour to shower and get ready, then 90 uneventful minutes later I'm in line for my ...
September 22, 2010
Had my monthly Zometa infusion yesterday; no big deal. When I first stated taking Zometa, I had numerous aches and pains; but these no longer occur.I also got last week's (9/17/2010) lab results: Igg up to 1506 mg/dl from 1503; M-spike stayed the same at 1.2 g/dl; and Kappa ...
Not Much To Update
Well there's not much to say - and that's actually good.
Quick Update
Alpesh met with Dr Ansara, his endocrinologist and latest bloodwork indicates that vitamin D counts are low (he had stopped taking the supplements due to the unexplained darkening of the skin but it looks like he has to start again). We also noticed that when he was on 75mg ...
Three Years Of A New Life – A Carers View.
As Hamada approaches three years since his Stem Cell Transplant which undoubtedly saved his life, we are eternally grateful for the extra years he has obtained from this procedure. So many of us debate about which way treatment for Multiple Myeloma should evolve. What drugs ...
The VBiRD has Flown
The vultures
My Thoughts Today.
My thoughts and prayers today are with Dianne and Vern West of Nevada USA. Vern who was diagnosed with MM at the same time as Hamada, has endured so much with courage and such great dignity.We have supported each other along the way with this fight against the 'beast', throu ...
September 16, 2010
Last Tuesday I drove over to Crescent Beach and walked in the surf; the weather was nice and the beach was almost empty. Stopped off on the way home for beer and shrimp. Very thankful that I can do day trips by myself.Had the clinic send me a copy of all my treatment charges ...
Rev-lite trial: end of cycle 5.
I was at daystay on Tuesday for my monthly Rev-lite trial consultation and Aredia.All is well, all is stable, and test results remain in the normal zone, an uneventful medical month.Cholesterol has returned to normal as well thanks to the diabetic diet.The glucose reading is ...
Jerry – We re-did the kappa test last Wednesday, …
Jerry - We re-did the kappa test last Wednesday, I do not know why I have not received results yet. I will call tomorrow morning to find out. I will also look up which kind I have from my early lab tests so they are fresh when I hear the new lab results.Thanks for the remind ...
First round of treatment
I have now completed the first round of three weeks of Revlimid and then a week off. Just started the next round. No indication yet of whether it’s working as it can take quite a while. My first blood test has just gone off the London and could take at least a couple o ...
Good luck with the CT. Have you ever had the Seru…
Good luck with the CT. Have you ever had the Serum Free Light Test? If you have them routinely they might indicate the recurrence of myeloma before other indicators. What type of myeloma do you have, IgG Kappa, IgA Kappa ... etc..?
FREEDOM!
Mama Bear is OUT of the hospital!!!THANK GOD!!!My brother and I went down to see her over the weekend, and her counts were slowly rising (with the help of G-CSF shots). Saturday her neutrophils (a type of WBC) were at 0.4. The doctors usually want you to get to a CONSISTENT ...
Jerry, Thank you for the encouragement. Writing h…
Jerry,Thank you for the encouragement. Writing helps me think about something other than the pain and the gripping anguish. I wish you all the best you can find from the simple happiness that can be found from the slightest good things -- whatever that might mean for you and ...
I came across your blog yesterday. I have read it…
I came across your blog yesterday. I have read it all. I enjoyed the read.Sorry the surgery didn't do anything for your pain. Spinal pain treatment seems to be trial and error. My wife has about 6 vertebrae compression fractures. She had about 2 or 3 epidurals that ...
SEPTEMBER 4TH, 2010 "54TH ANNUAL SHELBY HAMFEST"
Had a great time at the 54th Annual Shelby Hamfest and got to meet a couple of hams I usually talk with daily on 3895 ,but had never met them in person before. Got to meet N4LMF William & K5TBZ Craig. I rode down with my good friend W4WWF Dale. There was a great turnout even ...
September 12, 2010
Chemo or no chemo:I have now been off chemo for about 2 1/2 months and I feet quite good; however my numbers (Igg, M-spike, and Kappa LC) are probably getting worse; I will know my new numbers in about 10 days after my 9/17/10 O/H visit. This is always a dilemma; feel good w ...
As Summer Fades – A Cancer Prayer.
As Summer fades and the air is filled with signs of Autumn.As the leaves start their change in colour and their sprinkling fall;the rhythm and flow of life continues its clever path.This in-between state that suspends betwixt the seasons, is all my heart desires.To call on t ...